Register a #MillionsMissing event

This May, from May 5th to May 12th, we will take to the streets - or from our beds - to show the world we are here, we are the #MillionsMissing, we will continue to fight for our demands for people with myalgic encephalomyelitis (ME).

Those who plan to participate virtually or in a private home event only need to fill out the first page. For public events we will collect additional details on a subsequent form page. 

If you are looking to RSVP for an existing event or learn more, keep checking www.millionsmissing.org for updates! We will post public events as we get them.


#MillionsMissing is a big, diverse and global movement that comes together to boldly demand ME health equality now. We welcome people from a range of viewpoints and approaches in the community to participate in ways that are most effective in their locale. We do require organizers, and any supporting group to affirm that they align with the ultimate goals of #MillionsMissing: funding equity for biomedical research and ethical treatment of people with ME worldwide. Any group not in agreement will not be able to participate in the #MillionsMissing campaign.